Month: January 2018

Baby steps

So let's explain a little bit more about what has been happening over the last four days and beyond. So we are all on the same page, I have a severe joint infection of my left hip. This was most likely part because of the high dose steroid use and my HLH. The combination of … Continue reading Baby steps

The Learning Curve

And so the time has come. Finally. We traveled to Boston. But not without said drama. 4 days in the hospital, over Christmas mind you. For neutropenia, pneumonia, positive blood culture.  Finally after 4 days, everything finalizes as negative. Except for a possible viral pneumonia. So I am given neupogen and bolstered up. If you … Continue reading The Learning Curve