Within in this blog I hope to help others find the “inside track” on their journey. A little faster, a little smoother and fewer obstacles. Being diagnosed with a rare disease is never easy and I am hoping that others who are experiencing this will learn to utilize the resources that are available and hopefully for patients with HLH this will be one.
Also as a 20 year casual runner- you realize that each step you take in a journey is just that, one more step. Some days that’s all you got. All days, that’s all you need. God has helped me tremendously recognize this part of the journey and has worked true miracles in my life. I cannot wait to see how we work together to make a difference.
Please contact me here with any questions or comments and I will get back to you.