Let's start out with a big celebratory "Yay!" For day 100! For those of you who don't know, day 100 is an arbitrary marker that you are out of the most danger. Usually the largest complications of BMT appear before or shortly after this 100 day mark. Reactivation of viruses, graft versus host complications, other … Continue reading Heartbreaking/ Day 100 →

The healing continues. I am 86 days into it, but as Dr. Superwoman likes to remind me; I am very early in the recovery process. It doesn't feel like it. I feel as if I have been plagued by this disease forever. But as I look back to pictures took a year ago, the bumpiest … Continue reading Painstaking →

Day 75/100. 25 days until I am out of the most critical time post transplant. Day 100 is my daughter's birthday. I remember when I was a medical/surgical nurse, hearing the cardiothoracic surgeons tell patients, "you'll be back to normal in 6 weeks," and me thinking in my head, "yeah right." At the time, open … Continue reading To that One Soul →

I have weekly appointments with Dr. Superwoman. I have to admit she is one of the most thorough, diligent, comprehensive doctors I have ever had. I continue to struggle some with anxiety, but it is improving. Actually everything is improving: rash, nausea, pain, stamina. Ever week I am able to report some progress. But after … Continue reading “You don’t have HLH anymore.” →