Moving forward

As the saying goes, "no news, must be good news." Overall I must agree. When I am quiet, one of two thing are happening, I am either extremely depressed or super busy and really don't have anything to say. I am proud to announce that the latter is the truth. I never knew boring would …

Please, please help me

Catchy, little Beatles tune. Wish it brightened my mood on this dreary Boston day. Shoulder surgery over!  yaaaay! 5 more days before we leave boooooooo! for home yaaaaay! It has been a long three weeks. Insightful, necessary, healing, but long. From what I can tell, the shoulder surgery went about as good as it could …

I’m still standing

Back in Boston. Time for more healing. This equates to more surgeries, but innately, it is more healing. EVERYTHING HAS BEEN GOING SOOOOOO WELL. I just cannot complain. My counts are awesome. I'm 100% donor and fully grafted. I am cured of HLH. I have gotten 2 sets of immunizations. My PET scan is essentially …

Have a seat

Today was one of those mornings that I would have abhorred "before." It started out regular enough. Alarms went off, kids up watching TV, but then a little distraction, running a bit behind schedule... A tired kindergartner, who really wanted to pour the drinks leading to a wild and loud tantrum. They say the age …