Back from Boston. Proud to report that everything is going well. I mean it is. Really. As a transplant patient, I really am doing well. My counts are good. My liver is functioning. I have not had any opportunistic infections. My energy is improving. I am getting better. Really. Some days I have to talk … Continue reading Lady, Did you know?
Walk a mile in my shoes
"I don't want anything else to happen to you Mom. I want it to happen to me." Oh, how my heart is breaking over conversations like these. How can my child want my pain? There are very few things that I have been grateful for, but one is that it was me. Not my husband … Continue reading Walk a mile in my shoes
The Dark Side
I haven't been quite sure how to tell this part of the story. I am very convoluted in my feelings regarding it. There are so many facets to health and healthcare. And I have had the unique experience to view my situation from (sometimes) many sides. Patient, mother, nurse, nurse practitioner, research subject, patient, dying, … Continue reading The Dark Side
Heaven is a place on Earth
I can't believe it. I am over 6 months post transplant. Things have been going pretty well. Home is wonderful. A soft bed and pillow. Familiar faces, places. Things are moving at a fast pace. Some days I just feel like I am trying to keep up. I am still regularly overwhelmed with my limitations, … Continue reading Heaven is a place on Earth
