Please, please help me

Catchy, little Beatles tune. Wish it brightened my mood on this dreary Boston day. Shoulder surgery over!  yaaaay! 5 more days before we leave boooooooo! for home yaaaaay! It has been a long three weeks. Insightful, necessary, healing, but long. From what I can tell, the shoulder surgery went about as good as it could …

I’m still standing

Back in Boston. Time for more healing. This equates to more surgeries, but innately, it is more healing. EVERYTHING HAS BEEN GOING SOOOOOO WELL. I just cannot complain. My counts are awesome. I'm 100% donor and fully grafted. I am cured of HLH. I have gotten 2 sets of immunizations. My PET scan is essentially …

Have a seat

Today was one of those mornings that I would have abhorred "before." It started out regular enough. Alarms went off, kids up watching TV, but then a little distraction, running a bit behind schedule... A tired kindergartner, who really wanted to pour the drinks leading to a wild and loud tantrum. They say the age …

Hazard Lights

I am marking many year anniversaries in this month and last. "One year ago we left for Boston (December 29)." "One year ago I had the surgery to remove my septic hip joint (January 10)." "One year ago, I was at the rehab hospital (that would be current time January 20's)." Conversations reflect on these …