Day 75/100. 25 days until I am out of the most critical time post transplant. Day 100 is my daughter's birthday. I remember when I was a medical/surgical nurse, hearing the cardiothoracic surgeons tell patients, "you'll be back to normal in 6 weeks," and me thinking in my head, "yeah right." At the time, open … Continue reading To that One Soul →

I have weekly appointments with Dr. Superwoman. I have to admit she is one of the most thorough, diligent, comprehensive doctors I have ever had. I continue to struggle some with anxiety, but it is improving. Actually everything is improving: rash, nausea, pain, stamina. Ever week I am able to report some progress. But after … Continue reading “You don’t have HLH anymore.” →

I truly understand the concept of homesickness. The hospital had become more like a jail. I yearned just to be touched, hear my kids, go to the bathroom when I wanted, and eat real food. My appetite had recovered a little and hospital food is simply terrible. I really, really really, wanted to go home … Continue reading Jailbreak →

Goodness. The haziness of those days of illness faded quickly. I had received 14 units of blood (each unit is about a pint), been through emergency surgery and basically come out ok. The BMT was still on. Time for chemo. Yay. I was undergoing a "reduced intensity" chemo. This means that I would be doing … Continue reading What the hell happened to you? Part 2 →