It seems so easy. BMT means cure! But let's talk about it like this: You are on an island. This is not a completely peaceful island, but it does have it's perks. Warm sunny days, kitty's that lay on your lap, 3 kids that run around joyfully, a husband who loves you dearly. But there's …
Drinking beer, eating cheesecake
It's incredibly difficult to "feel" well. I was hyper-vigilant before, now it's hard to even let myself feel better. But, well I AM feeling better. My husband had read a lot about HLH, mild cases (less well known because they don't meet the criteria), and severe ones. It seems that HLH may be a continuum …
21 days (part 2)
Completely and utterly taken aback. More and even larger nodules on the chest CT. I was scared. I looked at my husband and my children and felt that for the first time I was 1 day closer to dying. I tried to have a positive attitude, but it was just so much more than that. …
21 days (part 1)
The last thing Dr. Yoda said to me as he was going out of the country was, "behave yourself." Seriously, do people not think I like a challenge? I don't like to hear stats anymore, "only 1% of people have this complication or <1% of people will develop this disorder." Had he not read the …
Glittered Path 