The healing continues. I am 86 days into it, but as Dr. Superwoman likes to remind me; I am very early in the recovery process. It doesn't feel like it. I feel as if I have been plagued by this disease forever. But as I look back to pictures took a year ago, the bumpiest …
To that One Soul
Day 75/100. 25 days until I am out of the most critical time post transplant. Day 100 is my daughter's birthday. I remember when I was a medical/surgical nurse, hearing the cardiothoracic surgeons tell patients, "you'll be back to normal in 6 weeks," and me thinking in my head, "yeah right." At the time, open …
“You don’t have HLH anymore.”
I have weekly appointments with Dr. Superwoman. I have to admit she is one of the most thorough, diligent, comprehensive doctors I have ever had. I continue to struggle some with anxiety, but it is improving. Actually everything is improving: rash, nausea, pain, stamina. Ever week I am able to report some progress. But after …
Jailbreak
I truly understand the concept of homesickness. The hospital had become more like a jail. I yearned just to be touched, hear my kids, go to the bathroom when I wanted, and eat real food. My appetite had recovered a little and hospital food is simply terrible. I really, really really, wanted to go home …
Glittered Path 