I am a decently smart person and this diagnosis is difficult to understand in its pathology. I will try to explain it the best that I can. Let's look at the name, it tells a lot: Hemophagocytic- latin for "eating blood" Lymphohistiocytosis- lymph- part of the immune system, histio- histiocytes- the type of cell …
Ladies and Gentlemen we have a winner…
Pathology report from Pittsburgh: The enlarged spleen with activated macrophages, and fairly extensive erythrophagocytosis, with a high intermixed content of CD3+ lymphocytes is a pattern seen in hemophagocytic lymphohistiocytosis (HLH) and other forms of macrophage activation syndrome, which is correlated with the patient's history of fevers and cytopenias. Tendencies of HLH- hemophagyocytic lymphohistiocytosis. Hard to …
It is in the valleys I grow
Surgical remission. Removing the spleen allowed my counts to come up and basically for me to start to feel normal again. 32 staples left me a reminder that I wasn't the same on the inside, but hopefully we were getting closer to a treatment plan. What we had to do now was sit and wait. …
How to get through the ER- even at Vandy
Something that has almost worked against me through this adventure is being "young and healthy." While I do feel that I have benefited from being "young and healthy," what that doesn't mean is that I am disease free and should not be treated with some amount of caution. What "young and healthy" means in the …
