Back in Boston. Time for more healing. This equates to more surgeries, but innately, it is more healing. EVERYTHING HAS BEEN GOING SOOOOOO WELL. I just cannot complain. My counts are awesome. I'm 100% donor and fully grafted. I am cured of HLH. I have gotten 2 sets of immunizations. My PET scan is essentially …
Have a seat
Today was one of those mornings that I would have abhorred "before." It started out regular enough. Alarms went off, kids up watching TV, but then a little distraction, running a bit behind schedule... A tired kindergartner, who really wanted to pour the drinks leading to a wild and loud tantrum. They say the age …
Hazard Lights
I am marking many year anniversaries in this month and last. "One year ago we left for Boston (December 29)." "One year ago I had the surgery to remove my septic hip joint (January 10)." "One year ago, I was at the rehab hospital (that would be current time January 20's)." Conversations reflect on these …
Lady, Did you know?
Back from Boston. Proud to report that everything is going well. I mean it is. Really. As a transplant patient, I really am doing well. My counts are good. My liver is functioning. I have not had any opportunistic infections. My energy is improving. I am getting better. Really. Some days I have to talk …
Glittered Path 