Back from Boston. Proud to report that everything is going well. I mean it is. Really. As a transplant patient, I really am doing well. My counts are good. My liver is functioning. I have not had any opportunistic infections. My energy is improving. I am getting better. Really. Some days I have to talk … Continue reading Lady, Did you know?
Tag: hemophagocytic lymphohistiocytosis
"I don't want anything else to happen to you Mom. I want it to happen to me." Oh, how my heart is breaking over conversations like these. How can my child want my pain? There are very few things that I have been grateful for, but one is that it was me. Not my husband … Continue reading Walk a mile in my shoes
It seems so easy. BMT means cure! But let's talk about it like this: You are on an island. This is not a completely peaceful island, but it does have it's perks. Warm sunny days, kitty's that lay on your lap, 3 kids that run around joyfully, a husband who loves you dearly. But there's … Continue reading The island, the airplane and the gun
The last thing Dr. Yoda said to me as he was going out of the country was, "behave yourself." Seriously, do people not think I like a challenge? I don't like to hear stats anymore, "only 1% of people have this complication or <1% of people will develop this disorder." Had he not read the … Continue reading 21 days (part 1)