Imagine one day you walk into your house and look around and nothing you see belongs to you anymore. You see pictures of a beautiful family, but the mother is not you. There is food in the fridge, but it is things you cannot eat. There are games to play in the family room, but …
Is 8 enough?
Returned from Dr. Yoda today. Feeling more confident about the decisions we are trying to make. He definitely feels that BMT will mostly likely be the only way to successfully treat my HLH. The imaging I had completed on Friday showed- you guessed it a mixed result! My pelvic area is improving (although my marrow …
The island, the airplane and the gun
It seems so easy. BMT means cure! But let's talk about it like this: You are on an island. This is not a completely peaceful island, but it does have it's perks. Warm sunny days, kitty's that lay on your lap, 3 kids that run around joyfully, a husband who loves you dearly. But there's …
Drinking beer, eating cheesecake
It's incredibly difficult to "feel" well. I was hyper-vigilant before, now it's hard to even let myself feel better. But, well I AM feeling better. My husband had read a lot about HLH, mild cases (less well known because they don't meet the criteria), and severe ones. It seems that HLH may be a continuum …
Glittered Path 