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Glittered Path

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Tag: hemophagocytic lymphohistiocytosis

Posted on November 7, 2018November 7, 2018

Walk a mile in my shoes

"I don't want anything else to happen to you Mom. I want it to happen to me." Oh, how my heart is breaking over conversations like these. How can my child want my pain? There are very few things that I have been grateful for, but one is that it was me. Not my husband …

Continue reading "Walk a mile in my shoes"

Posted on October 22, 2017October 22, 2017

The island, the airplane and the gun

It seems so easy. BMT means cure! But let's talk about it like this: You are on an island. This is not a completely peaceful island, but it does have it's perks. Warm sunny days, kitty's that lay on your lap, 3 kids that run around joyfully, a husband who loves you dearly. But there's …

Continue reading "The island, the airplane and the gun"

Posted on October 10, 2017October 15, 2017

21 days (part 1)

The last thing Dr. Yoda said to me as he was going out of the country was, "behave yourself." Seriously, do people not think I like a challenge? I don't like to hear stats anymore, "only 1% of people have this complication or <1% of people will develop this disorder." Had he not read the …

Continue reading "21 days (part 1)"

Posted on July 8, 2017September 24, 2017

Cancer, have you, I think

There comes a time when you just know that things aren't going smoothly anymore. I had been working with my doctors several weeks to no avail. It was becoming more apparent that the doctors that I had just didn't know what to do. And that's ok. So how do you know when it is time …

Continue reading "Cancer, have you, I think"

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