The last couple of weeks I have been writing some observation posts, but now we reach a point where my story takes a very personal turn. I know, I know, what could be more personal than sharing poop stories? This post I have struggled with because it is so extremely personal, but so innately pertinent, … Continue reading The Commitment
Tag: HLH
Infection, have you, I think…
By the point I was seeing the Vanderbilt doctor (Dr. Yoda from this point on), I really wasn't feeling too bad.. but Dr. Yoda was going to wean me off my steroids (remember I said that steroids mask many other disorders and can even make some things worse) so they needed to stop. At that … Continue reading Infection, have you, I think…
Cancer, have you, I think
There comes a time when you just know that things aren't going smoothly anymore. I had been working with my doctors several weeks to no avail. It was becoming more apparent that the doctors that I had just didn't know what to do. And that's ok. So how do you know when it is time … Continue reading Cancer, have you, I think
New Year! New You!
Treatment plan thus far- Neutropenic medications - antiviral, antifungal, antibiotic- these medications would keep me “safe” in the world while we were working on a diagnosis. And STEROIDS- to aid in whatever inflammatory process was happening. Honestly- steroids are just a "go to" drug. Health care providers give them to almost everyone because they work … Continue reading New Year! New You!
